Liv's Blog
Liv's Blog
Liv's blog is a compilation of posts from the GoFundMe site, created initially by Jess Cope - a long time friend and collaborator with Lasse Hoile during their work on projects for composer and musician, Steven Wilson. Many of the posts will contain moving contributions from Lasse, Vitalia and their colleagues including video clips and photography of Liv's brave progess through her treatments and life at home with her parents. We hope you will learn from their experiences and help to spread and gather support for Liv and other children in similar situations.
Just a quick - amazingly - piece of news!!! Liv finally got a kidney!
She is currently undergoing the operation as I write this, its all still so unreal and out of the blue we both still can’t wrap our heads around this right now We got the call Friday night that a kidney was found, in Oslo, Norway- no less, and we had to get to the hospital Saturday morning, but it wouldn’t be until this morning Liv would be operated on because of all the tissue tests and whatnot they needed to complete before they could start! So we didn’t want to celebrate premature Liv also just completed another staphylococcus infection Wednesday and got on the kidney waiting list!!! So many infections after and mishaps its been one bloody ride to finally get here She is one brave little girl!
Will update again once the operation is over and we know how everything is… for now, we are here for the next 4 weeks, but we cannot wait for her to get her strength back and that all important chance to fully develop!
Lots of love from us three here!