Hello to our wonderful supporters and friends.
We wanted to share a little update on Liv’s progress. Our brave girl has recently started training to walk with the help of a special walker (or gait trainer, as they call it!). It’s such a heartwarming sight to see her standing and taking little steps with the guidance of her most amazing physiotherapist, we feel truly blessed to have her.
Since her dedicated space isn’t quite ready yet, Liv is practicing right in our tiny living room, which is a bit tight for all her needs. The project to finish her special therapy space has taken longer and has been more expensive than we originally estimated. But seeing her determination makes every moment worth it.
Right now, Liv is only able to receive one hour of physiotherapy at home each week, as her health means we can’t take her out much. Still, we’re hopeful and committed to helping her grow stronger and more independent.
Thank you from the bottom of our hearts for being part of this journey with us. Your support is making a world of difference for Liv.
With love and gratitude,
Liv, Vitalia & Lasse
Liv's Blog
Liv's Blog
Liv's blog is a compilation of posts from the GoFundMe site, created initially by Jess Cope - a long time friend and collaborator with Lasse Hoile during their work on projects for composer and musician, Steven Wilson. Many of the posts will contain moving contributions from Lasse, Vitalia and their colleagues including video clips and photography of Liv's brave progess through her treatments and life at home with her parents. We hope you will learn from their experiences and help to spread and gather support for Liv and other children in similar situations.
As many of you know, Liv receives dialysis at home, and while this allows her to stay close to us, it also fills our home with an overwhelming amount of medical waste and equipment. The first photos (see gallery below) show what accumulates just between the pickups - plastic bags, cardboard boxes, supplies - it all takes up a huge part of our home.
Liv’s room is filled with essential medical equipment, leaving little room for comfort or calm. She also needs to be closely monitored during the night, so the space isn’t just for her - it’s for us to be near, to watch over her, and to respond when needed.
Every other Thursday, we receive large deliveries of her dialysis supplies. You can see the boxes stacked down the hallway - a constant reminder of the scale of what’s involved in caring for our brave little girl.
That’s why this new conservatory space we’re building is so important. It’s not just a project - it’s a necessity. We’ve been incredibly lucky to have help from our family, who built the main structure with love and dedication. Once they left, we took over with everything we could manage ourselves.
And here, I just have to say - Liv’s mum is simply amazing. On top of everything she already does - day and night care, emotional support, and constant planning - she’s been putting in every extra ounce of energy to help finish this space. After a full day, she’s still up smoothing walls, organizing, cleaning, making it warm and welcoming. Tirelessly. She’s our rock and Liv’s biggest hero.
We’re doing everything we can, even when we’re running on empty. And we couldn’t do this without your help.
Thank you all for being here with us on this journey. Every share, every kind word, and every donation keeps us moving forward toward making a space that Liv so deeply deserves - a space for healing, comfort, and hope.
With love and gratitude,
Lasse, Vitalia & Liv
