Liv's Blog

Liv's Blog

Liv's blog is a compilation of posts from the GoFundMe site, created initially by Jess Cope - a long time friend and collaborator with Lasse Hoile during their work on projects for composer and musician, Steven Wilson. Many of the posts will contain moving contributions from Lasse, Vitalia and their colleagues including video clips and photography of Liv's brave progess through her treatments and life at home with her parents. We hope you will learn from their experiences and help to spread and gather support for Liv and other children in similar situations.


Liv on the way to OUH
Liv on the way to OUH

Our Journey to OUH

This week we took a big step forward in Liv’s journey: we drove down to Odense University Hospital (OUH) for our first in-person meeting with the transplant team. It was an important and emotional day — the doctors needed to see Liv, and we had a long conversation about what her upcoming kidney transplant will involve.

One of the most important parts of the visit was learning more about the donor process. Not just the two of us as parents, but also close family members are now beginning the testing process to see if any of us might be a match to donate a kidney to Liv. If no suitable donor is found among us, she’ll then be placed on the transplant waiting list — which covers all of Scandinavia.

The drive was long, and poor Liv got carsick both there and back — but in true Liv spirit, she was incredibly brave and didn’t complain once. She’s stronger than we can ever put into words.

In short - we are very hopeful for the future, even more so now, and very appreciative for the whole medical team caring for Liv in all aspects of her life.

Thank you all for standing by us — your support means the world during these uncertain, exhausting days. We’ll keep you updated as we learn more in the weeks ahead.

With love,

Liv, Vitalia & Lasse

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Our Warrior Liv
Our Warrior Liv

Update on our little warrior, Liv

Hi everyone,

We’ve been meaning to write this update for a while now, but the past few weeks have been an emotional whirlwind. Liv’s blood pressure spiked dangerously high—at one point it was up to 190(!)—which had us incredibly worried.

Thankfully, with the amazing care of her doctors and nurses, changes to her dialysis, it’s now under control.

But through it all, our girl keeps smiling—and so do we, because of her.

We wanted to say thank you again to each and every one of you who has donated, shared, or sent love. It means the world. We’re now starting an exciting project: converting our old conservatory into a special space for Liv—a little therapy haven where she can safely grow, develop, and thrive. We’ve begun tearing it down and hope to have it ready for the builders in early May.

We’ll be sharing more photos in the time ahead—of little Liv, of her joyful little face, and of the start of the conservatory transformation. We’re so grateful to have you with us on this journey.

With love and hope,

Liv, Vitalia & Lasse

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