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Liv's Blog

Liv's Blog

Liv's blog is a compilation of posts from the GoFundMe site, created initially by Jess Cope - a long time friend and collaborator with Lasse Hoile during their work on projects for composer and musician, Steven Wilson. Many of the posts will contain moving contributions from Lasse, Vitalia and their colleagues including video clips and photography of Liv's brave progess through her treatments and life at home with her parents. We hope you will learn from their experiences and help to spread and gather support for Liv and other children in similar situations.


Liv in the Therapy Room
Liv in the Therapy Room

From Hospice to Hope

Just a short note from us to share how far Liv has come this year.

Exactly four months ago today, we were still at Hospice with her, just beginning dialysis. At that point, Liv’s weight had gone up to nearly 19 kilos - much of it water her little body couldn’t get rid of because of her kidney failure. She was so swollen and fragile - it broke our hearts. But still, and despite everything and her being so ill - she managed to smile. That is what kept and keeps us going, she is such a strong little girl.

Today, Liv now weighs 13.7 kilos and, although still small for her age, she’s doing much better—and most importantly, she’s happy and improving as much as she can.

We’ve added two video clips - one from exactly four months ago, and one from now - so you can see the difference yourselves. In the latest video, she’s playing in her new special room (still unfinished, but already full of life and joy). This is the space where she’ll continue to grow stronger, do her physiotherapy, and prepare for her kidney transplant.

There’s still a long road ahead - but we’re walking it together, and we’re incredibly grateful to each and every one of you for your kind and continued support.

With all our love,
Liv, Vitalia & Lasse

The Therapy Room
The Therapy Room

The Therapy Room

Dear friends, family, and kind-hearted supporters,

We are overjoyed to share with you that Liv’s new motor skills and therapy room is now well under way! As you can see in these photos, the building project is moving along beautifully - and it’s all thanks to your incredible generosity and support.

Because of you, Liv’s new motor skills and therapy room is shaping up to be even better than we ever imagined. It’s not just a construction project - it’s a symbol of love, community, and hope that Liv will carry with her as she builds her strength before and after her kidney transplant.

What once was just a dream is now becoming a reality, and we couldn’t have come this far without each and every one of you. Your donations, kind words, and offers to help have meant the world to us. What’s even more touching is how many of you have gone beyond donations - showing up in person, lending your hands, skills, and time to help with the build.

From the bottom of our hearts, thank you for making this possible. We’ll continue to keep you updated as the work progresses, and we can’t wait to show you the finished space where Liv will have the comfort, strength, and support she so deserves.

With endless gratitude

Liv, Vitalia & Lasse

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