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Liv's Blog

Liv's Blog

Liv's blog is a compilation of posts from the GoFundMe site, created initially by Jess Cope - a long time friend and collaborator with Lasse Hoile during their work on projects for composer and musician, Steven Wilson. Many of the posts will contain moving contributions from Lasse, Vitalia and their colleagues including video clips and photography of Liv's brave progess through her treatments and life at home with her parents. We hope you will learn from their experiences and help to spread and gather support for Liv and other children in similar situations.


Our Warrior Liv
Our Warrior Liv

Update on our little warrior, Liv

Hi everyone,

We’ve been meaning to write this update for a while now, but the past few weeks have been an emotional whirlwind. Liv’s blood pressure spiked dangerously high—at one point it was up to 190(!)—which had us incredibly worried.

Thankfully, with the amazing care of her doctors and nurses, changes to her dialysis, it’s now under control.

But through it all, our girl keeps smiling—and so do we, because of her.

We wanted to say thank you again to each and every one of you who has donated, shared, or sent love. It means the world. We’re now starting an exciting project: converting our old conservatory into a special space for Liv—a little therapy haven where she can safely grow, develop, and thrive. We’ve begun tearing it down and hope to have it ready for the builders in early May.

We’ll be sharing more photos in the time ahead—of little Liv, of her joyful little face, and of the start of the conservatory transformation. We’re so grateful to have you with us on this journey.

With love and hope,

Liv, Vitalia & Lasse

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Vitalia and Liv
Vitalia and Liv

You are wonderful!

Dear all - you amazing people who have been so generous.

We would like to thank you all for your kindness and support. We are still in shock here and still can’t really believe it, and especially to Jess who did this for us, what an amazing and truly positive surprise that was. The world is indeed not as bleak as it sometimes seems with all of you people in it shining bright lights.

And also a special thanks to Frank Huser - we are simply humbled and speechless by your generosity.

We don’t know most of you wonderful human beings but hopefully one day we will get to meet you and thank you personally and with our Liv, for which all of your support will benefit her so, so much, and we are happy we now have a chance to do something very special for her to be able to train and develop, it means the world to us and especially, Liv.

We will try and update on the progress when we can so you all can see what will happen.

For now, just thank you thank you thank you all so, so very much.

Love from Vitalia, Lasse and little Liv

Xox