Blog

Liv's Blog

Liv's blog is a compilation of posts from the GoFundMe site, created initially by Jess Cope - a long time friend and collaborator with Lasse Hoile during their work on projects for composer and musician, Steven Wilson. Many of the posts will contain moving contributions from Lasse, Vitalia and their colleagues including video clips and photography of Liv's brave progess through her treatments and life at home with her parents. We hope you will learn from their experiences and help to spread and gather support for Liv and other children in similar situations.

The Therapy Room

Lasse Hoile 28 May 2025

Dear friends, family, and kind-hearted supporters,

We are overjoyed to share with you that Liv’s new motor skills and therapy room is now well under way! As you can see in these photos, the building project is moving along beautifully - and it’s all thanks to your incredible generosity and support.

Because of you, Liv’s new motor skills and therapy room is shaping up to be even better than we ever imagined. It’s not just a construction project - it’s a symbol of love, community, and hope that Liv will carry with her as she builds her strength before and after her kidney transplant.

What once was just a dream is now becoming a reality, and we couldn’t have come this far without each and every one of you. Your donations, kind words, and offers to help have meant the world to us. What’s even more touching is how many of you have gone beyond donations - showing up in person, lending your hands, skills, and time to help with the build.

From the bottom of our hearts, thank you for making this possible. We’ll continue to keep you updated as the work progresses, and we can’t wait to show you the finished space where Liv will have the comfort, strength, and support she so deserves.

With endless gratitude

Liv, Vitalia & Lasse

Building Strength for the Road Ahead

Lasse Hoile 28 May 2025

Hi everyone,

We wanted to share a little update after today’s important meeting about getting Liv ready—physically and emotionally—for her upcoming kidney transplant.

We had a thorough consultation with her physiotherapist and other wonderful professionals, and together we’re beginning to shape a care plan that will help Liv build strength and mobility. One exciting (and a little emotional) moment was seeing the walking aid—pictured here—which will help Liv learn to walk. It’s going to be a long and demanding journey, especially for her, but we’re so hopeful. Every little step will be a huge victory.

The meeting also gave us hope for getting more organized support at home. After nearly four years of round-the-clock care, we’re working toward finally having some in-home help so that we—as her parents—can catch our breath and maybe, just maybe, do a few everyday things that most people take for granted. It’s strange how something so small can feel so big.

And tomorrow marks the start of the conservatory build—Liv’s future training space right here at home. This will be a safe and protected place for her therapy, where she can practice using her walking aid and receive visits from her care team, all while staying shielded from infections she’s still very vulnerable to, especially leading up to and long after her transplant.

None of this would be happening without all of you—your support, kindness, and donations have helped us move mountains. We’re endlessly humbled and grateful.

Thank you for being part of Liv’s journey.
With love,

Liv, Vitalia & Lasse