Closing update for 2025

We really wanted to post a nice picturesque Christmas card and to tell everyone that Liv was over all the last small details and finally on kidney transplant list, which was the plan, a simple, positive no-nonsens update…. Buuuuut, a last minute decision that she needed to get a PEG tube (Percutaneous Endoscopic Gastrostomy tube) operated into her stomach, because the transplant team was worried all the medication she would need, when we get the call a new kidney is on the way, she would need a healthy dose of medication and in case she didn’t want to take it orally and on time, such a tube would be best, and we also agreed since Liv already gets so much medication orally and has a hard time with half of it, this was the best solution instead of having this done same time as her kidney transplant.

Long story short, while in surgery they then saw Liv had not one - but two(!) stomach ulcers!! Which now also explains why she’s been extra unwell for a very long time, not wanting to eat proper, constant nausea, extra problems with sleep… the list goes on… what just makes us a bit sad is that we have asked for a endoscopy (and also colonoscopy) for over a year, also because of her chronic stomach problems… but we are just happy they found out before it might have gotten worse as some of her pain medication (NSID) only made such worse… but how could we know? 

So we are again in an extended stay in hospital, flashbacks to last year… but now Liv is FINALLY, getting the proper treatment for this, and after last couple of weeks with the stomach team also have positive progress there, she just needs more meds and a new tube is more work and possible infections to worry about… it also means that Liv’s kidney transplant list is moved again 4-6 weeks into the future.

BUT - then it’s smooth sailing from there (as can be with such a thing) no more setbacks, no more problems - just a positive recovery and soon a new kidney so Liv can get her strength back and start to develop proper, it’s the only thing we wish and hope for now. 

So, we just wanted to let you all know the status of the end of 2025, and what a year it has been, this time last year Liv was emergency baptised, we didn’t know if she would survive, we got transferred to hospice… but luckily hope was there for our Liv, although we had hoped getting on that list in the summer, but such is life. Luckily we were also blessed with such heartwarming and amazing support from all of you, and dear Jess started that amazing fundraising page - she is an angel. 

It got us through this year knowing there are so many people out there thinking of us, helping and we do wish we one day will be able to meet you all and give you all a big long hug, meet our Liv, who is full of life and fighting the hardest battle for her life - she will get through this, WE will get through this, thanks to all of you, although most of you are strangers, we feel we know you all a little and will always be welcome here. 

We wish you all a peaceful Christmas and a very happy New Year. May 2026 bring more peace to the world and less of the chaos we have all felt lately.

With love and peace, 
Liv, Vitalia and Lasse