This past week has been a bit of a tough one.
The final stages of Liv’s new therapy space are taking shape - and while we’re so close to the finish line, it’s also taken a lot out of us. On top of everything else, we’ve had to remove our old bathtub to make space for a roll-in bath, so we can safely and comfortably bathe Liv without risking our backs. Until it’s installed, we’re using a mobile shower/toilet unit out in the garage, and… well, let’s just say it hasn’t made life easier. But we keep reminding ourselves why we’re doing this - and that the end result will be worth it.
Liv has also had her latest round of blood tests. Her phosphate levels were a bit too high, so we’ve started giving her something to help reduce that in her food. She also received her last vaccine and a shot of epo, which means that medically, she’s now ready for a kidney transplant. The only thing holding her back is her weight - it hasn’t been gaining as much as the doctors would like, but we’re hopeful that she’ll reach her goal in time. She’s still having some stomach trouble and hasn’t been sleeping as well as usual. We’re hoping to get an endoscopy soon to finally get some answers - this has been ongoing for years now, and we just want her to feel better.
But in the middle of all this, we had a truly beautiful moment: Liv got to ride a horse for the first time ❤️ It’s something we’ve been hoping to do for a long while - recommended by her physiotherapist to help her balance and cognitive abilities. Though she was tired, she absolutely loved the experience. Being outside, doing something new - it meant the world to us all. And when the weather is nice, we’ve been having little picnics in the garden - something simple that brings Liv a lot of joy. She even had her first taste of pink lemonade recently, and she was so curious and delighted We’re really looking forward to finishing her new therapy room soon, so Liv can begin more extensive training in a space made just for her needs.
We know how much it’s going to help her - and us. Thank you so much - from the very bottom of our hearts - for helping us make this all possible.
Much love from, Liv, Vitalia & Lasse.
