Dear friends and supporters,
This past week brought some hard news. After months of hoping and testing, both Vitalia and I have learned that we are not suitable matches to be kidney donors for our little Liv. Obviously, that was not the news we were hoping to get.
But the search continues. Other close family members are still being tested, and we’re holding on to hope that a match may still be found there. In the meantime, we’re also preparing for the possibility of Liv needing to go on the transplant list. While that option is not worse, it does come with a longer waiting period, a slower start for the new kidney, and a more delicate recovery. But we will do whatever it takes - and we have to be ready.
That’s why Liv’s new therapy space at home is more important than ever. It’s still under construction, running behind schedule (as these things often do), but we’re aiming to have it finished by the end of June. This space will be vital in helping Liv grow stronger and more prepared for the transplant journey ahead.
At home, we continue daily training with her. She’s had a few difficult days lately, likely due to needing her regular EPO dose, which helps her body manage the effects of kidney failure. Her weight has dipped slightly - down to 13.4 kg - and our doctors would ideally like to see her closer to 15 kg before surgery. We’ll be back at the hospital next week to check on her vitals and adjust her care as needed.
Despite everything, Liv continues to shine her light. Every step she takes, every smile, every laugh - it reminds us why we fight so hard. And your continued support gives us the strength and means to keep going, even on the harder days.
From the bottom of our hearts, thank you for walking this road with us.
With love,
Lasse, Vitalia, and Liv ❤️
