Blog

Liv's Blog

Liv's blog is a compilation of posts from the GoFundMe site, created initially by Jess Cope - a long time friend and collaborator with Lasse Hoile during their work on projects for composer and musician, Steven Wilson. Many of the posts will contain moving contributions from Lasse, Vitalia and their colleagues including video clips and photography of Liv's brave progess through her treatments and life at home with her parents. We hope you will learn from their experiences and help to spread and gather support for Liv and other children in similar situations.

…aaaand back in hospital again

Lasse Hoile 25 September 2025

So, we had hoped to show a bit more upbeat Liv and on her new trampoline she got for her birthday (which she loves and good for her training too) - but last few days have been a bit uneasy for Liv, especially at night and during her sleep, and last night was really bad.

We had suspected it could be what we have tried to avoid at all costs but a test this morning from her stomach showed a big positive sign - Liv had gotten Peritonitis (Bughindebetændelse (in danish))

A quick call to hospital - and on our way we were again.

Lot’s of blood tests again and then a rinse of her stomach and in with a dose of antibiotics again - luckily we caught it early as possible. So now we await the test results to see what a more targeted type of antibiotics Liv needs to get and is being monitored here for the next few days.

We remain hopeful for a snappy recovery for Liv and able to get back home as soon as possible. Again, she is taking all this really well despite her pain, she is a tough little cookie, she really is ❤️

Thanks again to everyone reading and following our little Liv through all of this - and for your invaluable and heartwarming support - thank you❤️

Love from us all at Hospital HQ.

Xox

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A possible kidney for Liv!

Lasse Hoile 22 September 2025

Dear all you amazing and kind people.

It’s been a while since we made an update and we really wanted to post something meaningful - it’s just been a few extra exhaustingly few past months, and with a bunch of extra hospital visits (outside the usual) on top… well, I think you know by now.

That being said, Liv is finally over her Staph infection and again getting back her strength, slowly but surely, she remains the ever happy and tough little girl that she is❤️ Her blood pressure is a bit high again so we getting that under control again steadily.

We also had our trip down to Odense Hospital for the big tour, after the long delay, Liv got examined by all the different doctors and specialists who is going to do all their magic once the kidney transplant is possible.

And on that note - Liv might be closer to such - and without jinxing anything - we are so, so very happy to report that we just might have a kidney donor❤️

Although nothing is certain right now, but it’s safe to say that emotions ran high and still after that piece of exceptional good news.

The donor is Vitalia’s older sister❤️, both her and Liv went into blood tests this Tuesday at the same time, and today we got the news that sister is booked for a three day intensive testing at the end of October! We hope for the best but also waiting before really believing it’s actually happening.

Words, right now, really can’t describe what goes through all our minds of emotions. All we can say is - we are just incredible lucky, blessed and we remain hopeful and positive. Vitalia’s sister had to loose weight to be able to get ready, and she lost over 15kg in just a few months and is almost there, such commitment is beyond what we can comprehend at the moment- that’s real ❤️. For her to give up a kidney for our little Liv so she can finally get back to some normalcy and a better life developing… well, words simply cannot describe it right now

We will, of course, update more on all of this soon and also Liv’s special room❤️ but we made a little video of Liv getting back in her little ‘walker’ gizmo for training, a first since the unfortunate accidents with her dialysis tube early July.